I found out my son had hemophilia a few hours after he was born. I did not know what that meant for my future. When the hospital tested my son for hemophilia, they were unable to access a vein, which lead to them drawing blood from a vein in his head. As you can imagine, this was very scary to me. Over the next several years I became my son’s advocate and went back to school to obtain my Bachelor's Degree in Business Management. I wanted to continue as his advocate but also be the voice for other women that did not have the time to find resources. I heard at one point in my life "you don’t have to fix all issues just pick one and do something," and so I did.
I first got involved with Sangre De Oro in 2008 as a local sponsor for the golf tournament. I didn't know much about hemophilia but over the years, I have learned all about hemophilia and other bleeding disorders. After seeing first hand what SDO does to support the community, I wanted to get involved as more than just a sponsor. I was voted on to the board in 2015 to assist with the human resources side of the business. In January of 2016, I was voted in as President and am looking forward to doing great things with and for the community.
I became involved with SDO because my oldest son Isaiah was going through a lot of issues at the time. During our stays at the hospital Dr. Matthew encouraged me to look at SDO and think about getting involved. After researching SDO and understanding what they did I felt that I could help out and make a difference in the bleeding community. I also wanted my sons to see that to make a difference you have to get involved. You can't just sit back and be a spector.
I have been involved with Sangre De Oro, Inc since I was a child. I was encouraged by my family because I have severe hemophilia. I was very involved in camp and it became a part of my identity. As a man I realized that I wanted to give back and with encouragement and support I was put on the board. I am thankful for the experience and the family that I am part of.
My name is Sophia Minhas. I was born and raised in Lahore Pakistan. I was adopted at the age of 14 and moved to dallas. I have a 6 year old son who does not have bleeding disorder. My brother was the reason I was diaganosed for factor vii deficiency. I wasn't involved with Hemophilia community at all until i was 4 years ago, when I became part of walk committee at Sangre de Oro, then became advisory board member for 2 years. Then 2015 I was elected to be a SDO's secretary. And now I serve as a Secretary of SDO, walk committee, bloodsisterhood , CDWG, and HFA board member for NM.
Board of Members
The SDO family has been an important part of my life since 1986. My parents, Gary & Dinah Desoto, were part of the first four founding families of SDO in the State of New Mexico.
I have suffer with severe Hemophilia A, and have been helped innumerable times by the SDO & HTC family in the past. I look forward the future knowing they will be here for me as well as they were in the past.
It is my good fortune, at this time, to be able to give back to the SDO family.
I am from Claremore, Oklahoma and graduated High school in 1975. I attended Oklahoma State Tech and went on to obtained a Bachelors in Psychology from Central State University. I am proud that I have received 5 separate vocational trades including a degree in Architectural Design. I am a 30 year veteran in Toast Masters and received the Distinguished Gavelier and ATM Silver. I was the President of the Green Country Jr. Chambers of Commerce and received Oklahoma's highest governorship. I was the Vice President of the Eastern Oklahoma Arts Association and a member of the US Chess Federation. I moved to NM and became familiar with the HTC after learning of Sangre De Oro, Inc I began attending meetings. As an avid volunteer in my home state I thought it was important to volunteer at this organization. With the complexity of blood problems let to misdiagnosis I never got the correct treat, I am missing factors 5,8,9, &13 and was always told I have Leukemia. I now want to make sure that the community knows how to advocate and speak to their doctors.
Tonya M. Louis, MSW, is an enrolled member of the Acoma Pueblo Tribe and has been working in the field of Behavioral Health Services for over 10 years. She received her Master of Social Work from New Mexico Highlands University in 2012. She also received her Bachelor of Social Work from Western New Mexico University in 2011.
Currently, Ms. Louis is a Licensed Master Level Social Worker, serving in the capacity of the Clinical Director with Acoma Behavioral Health Services. She specializes in the field of substance use and suicide prevention. She is also certified in Native American Inspired Equine Psychotherapy, Motivational Interviewing and is a certified trainer in Connect (prevention/postvention) and Mental Health First Aide (youth/adult).
Ms. Louis has extensive experience working with program development, adolescent intervention processes and treatment interventions and has worked previously for six years as the Prevention Supervisor with the Acoma Behavioral Health Services Department. She has also worked for the New Mexico Department of Corrections in the capacity of Behavioral Health Director and the New Mexico Department of Health- Public Health. She has extensive experience working with culturally relevant treatment and prevention models. Ms. Louis works with various Tribal and non-Tribal service agencies, and a wide range of clientele. Her work also entails being a co-lead grant coordinator for various Federal grants.
Ms. Louis is an active member in her community, serving as the Vice Chair for the Acoma Library Board and a current member of the Acoma Community Action Team. She willingly gives her time to her community to promote health and wellness, prevent substance use, and is a strong advocate in suicide prevention. In addition, Ms. Louis is very passionate about advocating for the needs of individuals and families impacted by bleeding disorders.